Friday, August 26, 2011

10 Things I love about a Child with Disabilities

1.  Don't have to worry about their hands and knees getting dirty from crawling
2.  Don't have to worry about them putting things in their mouth they aren't suppose to
3.  Don't have to worry about them having temptations
4.  Don't have to worry about Major tantrums
5.  Don't have to worry about them beating up their siblings
6.  Don't have to worry about them drowning in the tub (Otter chair strapped in)
7.  Don't have to worry about them running off in the shopping mall and getting lost
8.  Don't have to worry about them making messes.
9.  Being able to give them hugs and kisses without them resisting.
10.  And above all Don't have to worry about them growing up too fast.

by Jaime Newman

Thursday, August 25, 2011

Wheelchair For Madilyn

    Wow, it has been a very long time since I have blog. With are crazy lives, moving, vacations, weddings, and school starting it seems as though I have had no down time for blogging.  I apoligize to those who only had this to see updates on Madilyn's progress.  Madilyn has been doing great, and is now 20 months.  She still is not able to get around on her own, so that is what brings us to this current stage; A wheelchair (Yikes).
    
     We really felt Madilyn needed something so she could explore her world in other ways other then carrying her from room to room.  Thanks to Shriners once again,  they donated this little wheelchair for her.  It has a little desk that can be attached and also has multiple recline positions for her.  It was a bitter sweat day when we picked up her wheelchair.  Most moms and dads are filled with Joy when they watch there babies walk or crawl for the first time.  But here we were excited to see are little girl sitting up so well in her new wheelchair.  Strange feeling, a feeling I will never forget.


   We have only been using the wheelchair in the house to move her room to room. We haven't brought it outside of the house yet,  I just don't think we are ready mentally.  The stares, the comments, and most of all making Madilyn vulnerable to the outside world of judgements.  I know we will have to come to terms with this new way of being, this way of life, but for now we are just coping the best we know how; baby steps!!


   The pics we took were at Shriners hospital. She was not happy at first because she didn't like the wheelchair doctor so close to her.  As we wheeled her around she actually enjoyed it and loved the mobility.  Bless her little heart she was such a trooper!!!